Aging parents

mrsrobinson

Well-Known Member
Mar 9, 2006
7,704
Virginia
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2001 380DA
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Caterpillar 3126
I figure a lot of us have aging parents so I thought I'd vent a little here, share, get some advise, etc. I will try to organize my thoughts, but no promises :)

My mom is 84. She lives by herself in a Senior Living Facility (independently, not assisted). Her health has deteriorated quickly over the past few years. She has severe glaucoma, she is close to blind now. She had triple bypass heart surgery 3 years ago and now has congestive heart failure. She broke both ankles in the past 3 years. She had rectal prolapse surgery late last week. Both of her ankles swell. The list goes on and on. Her husband, I guess my step dad (he raised me) passed away a while ago from Dementia. She's tried to live with my 2 sisters at different times, didn't work out. I now know mostly because of her. My brother had a new home built 2 years ago and offered to build a 2nd master suite for her and let her live with them, she said No. She has no real friends.

We are not a close family. Not Let It To Beaver, not The Brady Bunch, etc. 1 sister and 1 brother local, one sister about 2 hours away. I have tried and tired and tried to help her with social isolation. I posted to NextDoor and 4-5 folks started calling her, offered to visit her. She had something negative to say about all of them. I found a neighbor who was cooking for her, talking with her; same thing, she found something wrong with him. I left a note on all of her neighbors door explaining her situation, can you knock on her door, call, say hello. Some have, she is not interested. I contacted and paid for NaborForce. After one visit my mom said No. I even found a couple where the husband has the same glaucoma she has, they chatted on the phone, she made fun of them.

I am a Meyers Briggs ISTJ. I am not a feeler, I make decisions based on facts. I will take care of you but not with warm fuzzy stuff. I am not naturally receptive to others’ emotions, not unless they are stated clearly, and someone usually only says “I’m angry” when it’s too late to address the initial grievance.

She literally sits in a recliner all day staring at the TV, or listening to it I guess since she doesn't see well. We think that's why she had the rectal prolapse. She will not leave her apartment. She will not walk, exercise, etc. She is convinced she should be in a wheelchair; all doctors say she can walk, and even without her walker, but for her sight.

There are many social activities in her building. When I visit I see folks gathering, chatting, laughing, talking, etc. She will not leave her apartment. She has 16 grandchildren and 12 great grand children. She chose not to be active in their lives growing up. 2 of the girls are still local and I have been asking them to visit her. One has, and you guessed it, all negative/critical stuff back from my mom. She talks about my brother and 2 sisters to me, behind their backs, critically/negatively and I keep asking her to stop. She does the same with me to them. And then she wonders why we don't want to spend time with her. When I was visiting her regularly it was VERY depressing. She sits in her recliner, talks about all of her medical issues/problems, how bad this/that doctor is, everything wrong with everybody, etc. I can't wait to leave.

She lives off of Social Security, no savings, no retirement. I have started paying for some of her recurring expenses.

I see her grocery orders from Instacart from her email. It's junk/crap/sugar/processed/salty garbage. I keep encouraging her to eat more fruits/vegetable. She claims she cannot because of her sight - odd IMO.

The local sister does A LOT for my mom. Much more than I would ever do. She does her laundry, cleans her apartment, etc. To help my sister out I am now paying the facility for what they call companion service, 1 hour a week. They will do anything in that one hour; clean cook, talk, take her for a walk, literally anything. There's a lot of tension between this sister and my mom, so I am hoping doing this will reduce that tension.

So she goes in for rectal prolapse surgery last Wednesday. She was going to be discharged on Friday but she somehow convinced them to put her in rehab for physical therapy. My best guess is she poured on the "poor me" at her apartment so they (the case worker) believed her and admitted her for 20 days of rehab; basically PT once a day then she lays in the bed the rest of the time. This happened when she was in rehab after her triple bypass. She did not want to go home so she prolonged her PT (refused to walk for example).

I care about my mom, I feel sad for her, but she does nothing to help herself. I am at a point where I am not calling or visiting her anymore, but I will still help her with some of her expenses. She should probably be in assisted living, but can't afford it. My 2 sisters are not in a position financially to help, my brother and I probably could, but I am struggling with this. Her saying "No" to everything I have tried to do to help her has reached a point where I think I don't care anymore. Her doing nothing to help herself with her health is the same. She fails to understand the correlation between no exercise, no social life, a bad diet and health.

I am curious to hear from others who are, or did go thru something similar. I feel like I should "do more" but, I just don't have it in me anymore. Her negatively, being critical, lack of doing anything on her own has worn me out. Regarding finances, I could help more but at some point it will cut into my finances, including my planned retirement funds.
 
Been down similar path. Quarterly family meetings to vent temporarily rose tempers against each other but, we soon realized we all cared for our mother. As a family we found a different bond than we had or did not have. As we understood where she was going, With out sounding crass it became about us kids and less about Mom. Reminiscing about the GOOD times is what got us through. We are better than we were 30 years ago. I want to think Mom felt better knowing we were communicating.
 
In closing you state you care.....but do you? She raised you from birth and got little to nothing back for years (decades?) and now because she "refuses to help herself" you turn away for what is likely the final years of her life? Be thankful you still have her, go see her every day - deal with it - and be thankful you can
 
I feel for you. My wife and I are dealing with very, very similar issues with both moms. My wife is an only child, and I have one sister. We are searching for answers. We care very dearly for our moms, but are struggling immensely with what we are even capable of doing here. I will be curious what others have to say.
 
In closing you state you care.....but do you? She raised you from birth and got little to nothing back for years (decades?) and now because she "refuses to help herself" you turn away for what is likely the final years of her life? Be thankful you still have her, go see her every day - deal with it - and be thankful you can

You question whether he cares, and assume he is not thankful because he is struggling with what to do? You are also assuming she got little to nothing back for raising her children. Many parents believe the 'got back' is more than the give right when you have the child.

I understand the challenges. And yes, it can be extremely hard to help someone who refuses to help themselves, no matter how much you may love them.
 
I am going thru a similar situation with my 88 year old mother. At this point I am an "only" child since my sister passed away many years ago and I feel the pressure of taking care of everything. My mother took my sister's passing very hard and became more or less a recluse, only leaving her condo to shop and work. She might show up for family gatherings but would leave after a short time. Never got much exercise but sits on the couch watching the TV.
Since I had to take the car away after she had an accident requiring 126 days in the hospital and rehab, I now do all her shopping and take her to the doctors etc.
She is exhibiting some signs of mental decline and gets confused easily with anything out of the routine.
She has a little bit of money but not enough to put her into any long term assisted living situation so I am trying to keep her in her condo as long as possible.
I recently had to get her an induction cooktop and electric percolator as she was shutting the gas off when she was done cooking but not completely and filling the lower floors with natural gas. Now the gas has been shut off to the stove. Luckily, nothing serious happened. She says it only happened "once" when it has been like 5 or 6 times...
And her diet isn't great either. Potato hips, flavored pretzels, cookies, Ice Cream, Granola bars, raisins, Carmel corn, vodka and Rhine wine (Gallon jug) make up most of her requested groceries.
It gets stressful.

My dad passed 41 years ago. He would be 101 if he was still alive.
 
We are caregivers. I made the decision to move from Florida to Michigan 4 years ago as my MIL couldn't handle being in Florida. We were willing to turn into snow birds for her but she was miserable down there. We weren't about to dump her in a home as she was able to function with help. She has dementia. As long as she can get around with help we're going to care for her. Was this in our retirement plans? Nope. We haven't taken a vacation/traveled since we started caring for her. Now, just over 5 years now. If she goes into memory care assisted living, she'll blow through her savings in about 3 years or so. Then what? I don't want nurses in and out of my house. I don't trust them. My dog wouldnt be happy. Why do I even have a 390DA? Good question. All it is to us is a day boat.
All of my wife's brothers and sisters are still working. They don't have the ability to "take over". There are times that I get frustrated, especially in the winter. I was never moving back to Michigan. Never say never.
Anyway, that's how we are handling a 92 yo "mom". She's sitting 10 ft from me right now staring at a magazine. Not really comprehending anything. We tell her what to do. Doesn't know where her bedroom and bathroom are. Wife has to get clothes out daily otherwise she would never put on clean things. We wake her up and get her aimed at the shower and then she's good to shower and get dressed. Luckily she stays happy most of the time. She still says she needs to go home because she has bills to pay and make sure the furnace is working. Then cries when she's told it was sold almost 4 years ago now.
That's my aging parent story. My mom and dad both died over 30 years ago.
 
Man do I have stories. :) I'll start with Grandma. Much like your mom. Kind of reclusive. Didn't trust anyone. Paranoid. Tended to be a hoarder. To make matters worse, the eldest sister "took over" and started with a bunch of BS that I would call exploitation of the elderly. She eventually developed dementia and we had to go to court to sort it all out. Lawyers made out like bandits. But thankfully she ended up in an memory care facility, with a daytime caretaker. Probably added five years to her life, as she hung in there forever. It was tough to see her because she had no clue who you where.

My mother, was very independent. Was loosing her mind and sick with Lupus. Unexpectedly passed away early at 69. Which kind of was a blessing. She was going down hill and refused to help herself. Very stubborn, like the Grandma above. We had to pull back from visiting her and stuff because it was just too much. Didn't help that the brothers really didn't get along. Kind of a mess, but history now.

Now go to Dad's side. My Grandfather was a hoot. When his wife passed, he went out and got himself a girlfriend and a job. She passed and he hooked up with another girlfriend. Had 3 sons and two daughters local. The daughters did the care taking, cleaned the apartment, etc. The sons where the bad influencers. Would go out for breakfast and "harass" the waitresses, all in good fun. But eventually, they had to take the car keys away. Move him into assisted living, etc.

And then there is Dad. Pushing 82. Giving Joe Biden a run for his money. Got caught in an Amazon account scam (he doesn't even have an Amazon account) and sent some dude a $500 target gift card before he figured out what was going on. Got a new hip, still cuts the grass and does some landscaping, but gave up on the snow a few years ago. Still gets around pretty good with a cane. He's got a wife, 20 years younger. So he's trying to put everything in place for her. Going thru all his old college basketball stuff and starts telling his stories. Running out of money (don't get divorced when you're 60). He'll be ok, cause he's ok with his age. Hasn't become grumpy yet. He's four hours away, so we depend that the wife has everything covered at this point.

I guess we all go thru it. Getting old sucks. Everyone treats old age differently. You can only do what you can do.
 
I have a similar situation, only vastly worse and impossible to deal with for the past 8 years. Trust me when I tell you, all that love can be turned over time. They can (and will) do their very best to try and bring you down at every turn. Misery loves company and when there isn't any, they try and create it.

My situation is a little different in that, my mother had a stroke and is half paralyzed, 8 years ago and has been in a nursing for the past 4 years after trying to make it in assisted living. I am an only child and I am the reason all bad things have happened to her including taking her money. She doesn't have enough capacity to understand Medicaid and what has happened to her. That is what makes me still call once a week. She is in another state 6hrs from me, seeing here isn't really an option when it is only fighting.

The ones who have been through this know what I am not saying. Only that life gets to be impossible at times. So @mrsrobinson your not alone in how you feel and I wouldn't worry about what others think. It only matters how you are able to deal with it and your significant other. Life is a big balancing act most of the time and the trick is not to let either side hit the ground.
 
My wife works in rehab and sees this on a regular basis ... and not just a single family situation, but the full range of how families handle it. I don't think I need to tell you where this ends. Take it day by day and be there to do what you can.
 
Just let her be….. at 84 you are not changing shit….. I just lost my 90 year old aunt….. I tried to pay… she wouldn’t have any part of that. I always visited the home and took her out for lunch…. My biggest regret and still bugs me is I didn’t visit her at Christmas. She died in her sleep shortly after. My advice is do what she wants and visit her as often as you can
 
Both my folks are in their 90's and my sister and I moved them into assisted living last year. My dad is just about blind (macular degeration in one eye and cataract removal in the other) and my mom has dimentia. Neither have fully adjusted to their new place. They don't participate in any of the scheduled activities - my dad is interested in this but my mom says "no way". If dad goes, mom accuses him of having affairs with the other women in the facility, so they just sit in their room and only leave for meal times. Luckily they are close by but it seems there is a challenge or two every week!
 
In closing you state you care.....but do you? She raised you from birth and got little to nothing back for years (decades?) and now because she "refuses to help herself" you turn away for what is likely the final years of her life? Be thankful you still have her, go see her every day - deal with it - and be thankful you can
Well said, and this is what I struggle with. I have guilt that I'm dealing with related to her. Not as much as I used to but I still have it.

I don't enjoy being around my mom, I don't like her company, I don't like all the negative critical talk. I know what she says about me behind my back as well and that bothers me. All four of us kids have caught her in numerous lies. My ex-father-in-law once said just because their family doesn't mean you need to like them. I struggle with this. She tries to pull me into the middle of disputes with my sister, the one who helps her a lot. I have repeatedly told her to stop yet she still does it. Happened the night before her surgery last week. She was refusing to do some of her prep work, my sister called to inform me, asking what I could do. My mom then called me and said my sister was crazy and had no idea what was going on that she was doing everything. This is a pretty common conversation with my mom. She still has her wits, has her memory, smart as can be, so we know she's doing this intentionally. I hate it, and I keep telling her to stop.

I've recently been telling my girlfriend and siblings I've come to terms with how I feel about my mom. My siblings are frustrated with her as well, my older brother and older sister do very little at this point if anything. I still take her to doctor's appointments and such cuz nobody else will, except the other sister, she's very involved with my mom but she too is getting frustrated and starting to back off.

I forgot to mention I paid for her to get the meal plan at her senior living facility. She used it for a while, then they messed up a meal, now she says they're awful and she refuses to use it.

My mom has never been a part of my life, growing up or at any time. Yes she gave birth to me and raised me, but literally, I have no memories of her growing up. I even recently asked her where was she, and she said she doesn't know. 100% of my childhood and teenage years memories are being with my stepdad, working on a car, working on a boat, working on a job site, etc. I offer this because the obligation and guilt that I've been feeling about what she did for me has been slowly going away.

I feel sad for my mom, and her circumstances, not sure I feel any more than that now though.
 
:D:p
In closing you state you care.....but do you? She raised you from birth and got little to nothing back for years (decades?) and now because she "refuses to help herself" you turn away for what is likely the final years of her life? Be thankful you still have her, go see her every day - deal with it - and be thankful you can
Wow ….. tough love…. If you saw my post I said what we are both thinking a bit nicer
 
Both my folks are in their 90's and my sister and I moved them into assisted living last year. My dad is just about blind (macular degeration in one eye and cataract removal in the other) and my mom has dimentia. Neither have fully adjusted to their new place. They don't participate in any of the scheduled activities - my dad is interested in this but my mom says "no way". If dad goes, mom accuses him of having affairs with the other women in the facility, so they just sit in their room and only leave for meal times. Luckily they are close by but it seems there is a challenge or two every week!
I always thought they should run assisted living like college dorms. Keggers start on Friday. :)
 
For Mr Empathy to say tough love that someone else, that's some serious tough love :)

I understood his point and didn't take it personally.
That’s the problem with the internet….. what you type can be interpreted differently….. I didn’t mean to offend anyone
 
Both my folks are in their 90's and my sister and I moved them into assisted living last year. My dad is just about blind (macular degeration in one eye and cataract removal in the other) and my mom has dimentia. Neither have fully adjusted to their new place. They don't participate in any of the scheduled activities - my dad is interested in this but my mom says "no way". If dad goes, mom accuses him of having affairs with the other women in the facility, so they just sit in their room and only leave for meal times. Luckily they are close by but it seems there is a challenge or two every week!
My cousin and his wife moved into assisted living 2yrs ago, both in their mid 80's. There wasn't enough room in their assisted living apartment, they couldn't get far enough apart like when they still had their home. They were fighting all the time they said, they ended up renting two apartments at assisted living, they each have enough space and get along fine now.:)
 

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